Back to Top Skip to main content

DHA’s TBI-focused Caregiver & Family Member Study continues at TBICoE

A husband, wife, and two children sitting at the Warrior and Family Support Center Genette Burges spends time with her husband Dan and children at the Warrior and Family Support Center at Joint Base San Antonio (Photo by: Lori Newman, Brooke Army Medical Center).

Recommended Content:

Traumatic Brain Injury Center of Excellence | DoD TBI Worldwide Numbers | Patient and Family Resources | TBICoE Research | TBICoE Podcasts | A Head for the Future

For the family members of some service members or veterans with traumatic brain injuries (TBI), caregiving is a 24/7 job. Those who live this daily life of caring for others are celebrated today with National Caregivers Day.

This may include assistance with daily activities, social interaction, and financial management. Without proper resources, these essential responsibilities can take a physical and psychological toll on the caregiver and the rest of their family.

In 2010, the Defense and Veterans Brain Injury Center, now known as the Traumatic Brain Injury Center of Excellence, launched the Caregiver and Family Member Study. This 15-Year Longitudinal TBI Study, led by TBICoE researchers at the National Intrepid Center of Excellence in Bethesda, Maryland is a congressionally mandated study that examines the effects of TBI incurred by service members. The specific focus of the study is on those who served in Operation Iraqi Freedom or Operation Enduring Freedom, and how those effects impact family members.

The Caregiver and Family Member Study aims to better understand the impact of the service member’s or veteran’s TBI on their family.

Now in its eleventh year, the Caregiver and Family Member Study has found that the time commitment and burden of caregiving is correlated with physical and psychological distress, poor sleep and disrupted family life. Frequently, caregivers balance their commitments toward their service member or veteran with childcare and other work duties, often receiving no help and having little time for themselves.

Caregivers also have unmet health care and care provision needs. These unmet needs can evolve to worse caregiver health and well-being.

However, the study also highlights that not all caregivers report negative outcomes. In fact, some report high levels of satisfaction and resilience and healthy family relationships.

Respite care, support groups, financial support, access to health care and training programs are critical for caregivers to manage the burdens of caregiving and to promote the recovery of the service member or veteran. Eligible caregivers can receive these services through the U.S. Department of Veteran Affairs Caregiver Programs.

Since launching the study, TBICoE has spearheaded several efforts to educate and support TBI caregivers, such as the development of the TBI Caregiver Quality of Life (TBI-CareQOL) Measurement System. TBICoE researchers at the NICoE plan to use measures from the TBI-CareQOL and larger Caregiver and Family Member Study as a screening tool to identify family members of NICoE patients at risk of poor health-related quality of life and in need of behavioral health care.

In addition, TBICoE’s “A Head for the Future” initiative has recorded testimonies emphasizing the need for robust TBI caregiver education and resources.

Brian O’Rourke, a retired Navy chief petty officer who sustained multiple TBIs, said, “My number one caretaker for the rest of my life is my wife, so for her to understand that I have TBI and how to help me deal with it is huge.”

TBICoE and NICoE staff anticipate that one of the overall impacts of the study is that caregivers are supported in their roles long term and their own health and welfare needs are attended to.

The TBICoE Caregiver and Family Member Study is ongoing and currently recruiting caregivers of service members and veterans with TBI and PTSD (TBI and PTSD caregivers), and parents and spouses who are not caregiving (non-caregiver military family members). Those interested in participating should contact the study leads at dha.caregiver.study@mail.mil or by phone at 855-821-1469.

To find additional resources for TBI caregivers and family members, visit the TBICoE website.

You also may be interested in...

MACE 2 Provider Training Refresher

Publication
4/5/2021

This version of the MACE 2 Provider Training is a shortened refresher of the full-length training slides.

Recommended Content:

Traumatic Brain Injury Center of Excellence | Provider Resources | TBI Educators | Traumatic Brain Injury

What You Should Know About Concussions Fact Sheet

Fact Sheet
3/30/2021

This fact sheet is designed to educate deployed service members about traumatic brain injuries immediately after concussion injury.

Recommended Content:

Traumatic Brain Injury Center of Excellence | Patient and Family Resources | Traumatic Brain Injury

Five ways to keep your brain healthy

Article
3/30/2021
Infographic with five ways to keep your brain healthy

Five ways to keep your brain healthy

Recommended Content:

Brain Injury Awareness | TBI Information | Traumatic Brain Injury Center of Excellence | A Head for the Future | March Toolkit | Brain Injury Awareness

Intrepid Spirit Centers promote healing from traumatic brain injury

Article
3/30/2021
Military health personnel in physical therapy

Intrepid Spirit Centers help heal TBI service members’ brains with interdisciplinary program and model of care.

Recommended Content:

Brain Injury Awareness | TBI Information | Traumatic Brain Injury Center of Excellence | A Head for the Future | Brain Injury Awareness Month | Brain Injury Awareness | March Toolkit

Visual dysfunctions common in even mild TBI patients

Article
3/30/2021
Military health personnel examining a picture of an eye

Vision Center of Excellence ocular medical specialists discuss visual dysfunctions resulting from TBI.

Recommended Content:

Traumatic Brain Injury Center of Excellence | A Head for the Future | Brain Injury Awareness | TBI Information | March Toolkit | Brain Injury Awareness | TBI Information

TBI Hot Topics Bulletin March 2021

Publication
3/24/2021

Are you a busy health care provider? Not enough time to keep up with the latest TBI research trends and news? Stay informed with the TBI Hot Topics Bulletin. TBICoE tracks the latest TBI scientific studies, advances, and discoveries most relevant to health care providers. This issue covers the fourth quarter of calendar year 2020.

Recommended Content:

Traumatic Brain Injury Center of Excellence | TBICoE Research | Provider Resources | Traumatic Brain Injury

HEADS: Protect Your Strongest Weapon

Publication
3/11/2021

This flyer promotes awareness of the key symptoms of concussion/mild TBI.

Recommended Content:

Traumatic Brain Injury Center of Excellence | TBI Educators | Patient and Family Resources | Traumatic Brain Injury

Distinguishing between TBIs, psychological conditions key to treatment

Article
3/10/2021
Military personnel holding a gun

Expert says long-lasting symptoms may be a sign of another issue.

Recommended Content:

Traumatic Brain Injury Center of Excellence | A Head for the Future | Traumatic Brain Injury | Brain Injury Awareness Month | March Toolkit | Brain Injury Awareness | March Toolkit | TBI and Psychological Fitness

Updated tools and training improve TBI and concussion recovery

Article
3/3/2021
A group of military personnel wearing face mask working on laptop computers

Up-to-date clinical tools help diagnose and manage TBI on and off the battlefield.

Recommended Content:

Traumatic Brain Injury | Traumatic Brain Injury Center of Excellence | TBICoE Podcasts | March Toolkit | Brain Injury Awareness | Brain Injury Awareness Month | March Toolkit | Brain Injury Awareness

March is Brain Injury Awareness Month; TBICoE’s mission lasts all year

Article
3/2/2021
Military health personnel performing a balance test on a patient

Staying a-head of TBI

Recommended Content:

Traumatic Brain Injury Center of Excellence | Brain Injury Awareness | A Head for the Future | March Toolkit | Traumatic Brain Injury | Brain Injury Awareness Month | March Toolkit | Brain Injury Awareness

Progressive Return to Activity After Concussion Video

Video
2/25/2021
DHA Seal

The PRA is an evidence-based, easy-to-use approach to help providers return service members with mild TBIs back to duty safely. TBICoE researchers have found that, if medical providers completed a two-hour, in-person training on the use of the PRA, their patients saw an overall reduction in symptoms after one week, one month, and three months, when compared to patients treated by providers who had not received the training.

Recommended Content:

Traumatic Brain Injury Center of Excellence | Provider Resources | TBI Educators | Traumatic Brain Injury | Brain Injury Awareness Month | TBI Resources | TBI Screening

TBICoE 2020 Publications

Publication
2/25/2021

Master list of 2020 TBICoE Research Publications.

Recommended Content:

Traumatic Brain Injury Center of Excellence | TBICoE Research | Provider Resources

Brain Injury Awareness Month "Be TBI Ready" Infographic

Infographic
2/24/2021
March is Brain Injury Awareness Month. Be TBI Ready. A traumatic brain injury—or TBI—is a blow or jolt to the head that disrupts the normal function of the brain. The severity of the TBI is determined at the time of the injury and may be classified as: mild, moderate, severe, or penetrating.

During Brain Injury Awareness Month, TBICoE and the MHS will promote the theme “Be TBI Ready” — recognizing that health care providers and others in the military community need to be aware of the latest educational trainings, research, fact sheets, and other available resources to prevent, diagnose, and treat TBI.

Recommended Content:

Brain Injury Awareness Month | Traumatic Brain Injury | Traumatic Brain Injury Center of Excellence | TBI Educators

Returning to Duty After Concussion

Infographic
2/24/2021
What's the best way to recover from a concussion? Returning to duty too soon after a concussion can lead to prolonged symptoms, decreased readiness, poor marksmanship, accidents and falls, and increased risk of more concussions. Progressively increasing activity in a step-wise manner can help you resolve your symptoms and return to duty safely. Ask your primary health care provider about TBICoE's Progressive Return to Activity to help you return to duty as quickly and safely as possible. Visit health.mil/TBICoE.

This TBICoE infographic gives an overview of the risks of returning to duty too soon after a concussion and explains how a progressive increase in activity can help get you back to duty safely. Returning to duty too soon after concussion can lead to prolonged symptoms, poor marksmanship, decreased readiness, accidents and falls, and increased risk of more concussions.

Recommended Content:

Traumatic Brain Injury | Brain Injury Awareness Month | Traumatic Brain Injury Center of Excellence | Patient and Family Resources | TBI Educators | Provider Resources

Progressive Return to Activity Following Acute Concussion/Mild TBI Provider Training

Publication
2/23/2021

The TBICoE revised the Progressive Return to Activity Following Acute Concussion/Mild Traumatic Brain Injury Clinical Recommendation (PRA) and this updated provider training slide deck. The trainings objectives will help providers to identify the key changes to the updated 2021 PRA; explain the rationale for using a PRA protocol for service members post-concussion; understand the criteria for progression following a concussion or mild traumatic brain injury; identify appropriate activities at each stage of progression; understand how to apply primary care management strategies and specialty referral considerations to treat concussed service members who are not progressing as expected; utilize the Tri-Service Workflow mild TBI Alternate Input Method Form to document the PRA in the Armed Forces Health Longitudinal Application.

Recommended Content:

Traumatic Brain Injury Center of Excellence | Provider Education | Provider Resources | TBI Educators | Traumatic Brain Injury | TBI Education and Training Events
<< < 1 2 3 4 5  ... > >> 
Showing results 1 - 15 Page 1 of 8

DHA Address: 7700 Arlington Boulevard | Suite 5101 | Falls Church, VA | 22042-5101

Some documents are presented in Portable Document Format (PDF). A PDF reader is required for viewing. Download a PDF Reader or learn more about PDFs.