Back to Top Skip to main content Skip to sub-navigation

DHA’s TBI-focused Caregiver & Family Member Study continues at TBICoE

Image of A husband, wife, and two children sitting at the Warrior and Family Support Center. Genette Burges spends time with her husband Dan and children at the Warrior and Family Support Center at Joint Base San Antonio (Photo by: Lori Newman, Brooke Army Medical Center).

Recommended Content:

Traumatic Brain Injury Center of Excellence | DOD TBI Worldwide Numbers | Patient and Family Resources | TBICoE Research | TBICoE Podcasts | A Head for the Future

For the family members of some service members or veterans with traumatic brain injuries (TBI), caregiving is a 24/7 job. Those who live this daily life of caring for others are celebrated today with National Caregivers Day.

This may include assistance with daily activities, social interaction, and financial management. Without proper resources, these essential responsibilities can take a physical and psychological toll on the caregiver and the rest of their family.

In 2010, the Defense and Veterans Brain Injury Center, now known as the Traumatic Brain Injury Center of Excellence, launched the Caregiver and Family Member Study. This 15-Year Longitudinal TBI Study, led by TBICoE researchers at the National Intrepid Center of Excellence in Bethesda, Maryland is a congressionally mandated study that examines the effects of TBI incurred by service members. The specific focus of the study is on those who served in Operation Iraqi Freedom or Operation Enduring Freedom, and how those effects impact family members.

The Caregiver and Family Member Study aims to better understand the impact of the service member’s or veteran’s TBI on their family.

Now in its eleventh year, the Caregiver and Family Member Study has found that the time commitment and burden of caregiving is correlated with physical and psychological distress, poor sleep and disrupted family life. Frequently, caregivers balance their commitments toward their service member or veteran with childcare and other work duties, often receiving no help and having little time for themselves.

Caregivers also have unmet health care and care provision needs. These unmet needs can evolve to worse caregiver health and well-being.

However, the study also highlights that not all caregivers report negative outcomes. In fact, some report high levels of satisfaction and resilience and healthy family relationships.

Respite care, support groups, financial support, access to health care and training programs are critical for caregivers to manage the burdens of caregiving and to promote the recovery of the service member or veteran. Eligible caregivers can receive these services through the U.S. Department of Veteran Affairs Caregiver Programs.

Since launching the study, TBICoE has spearheaded several efforts to educate and support TBI caregivers, such as the development of the TBI Caregiver Quality of Life (TBI-CareQOL) Measurement System. TBICoE researchers at the NICoE plan to use measures from the TBI-CareQOL and larger Caregiver and Family Member Study as a screening tool to identify family members of NICoE patients at risk of poor health-related quality of life and in need of behavioral health care.

In addition, TBICoE’s “A Head for the Future” initiative has recorded testimonies emphasizing the need for robust TBI caregiver education and resources.

Brian O’Rourke, a retired Navy chief petty officer who sustained multiple TBIs, said, “My number one caretaker for the rest of my life is my wife, so for her to understand that I have TBI and how to help me deal with it is huge.”

TBICoE and NICoE staff anticipate that one of the overall impacts of the study is that caregivers are supported in their roles long term and their own health and welfare needs are attended to.

The TBICoE Caregiver and Family Member Study is ongoing and currently recruiting caregivers of service members and veterans with TBI and PTSD (TBI and PTSD caregivers), and parents and spouses who are not caregiving (non-caregiver military family members). Those interested in participating should contact the study leads at dha.caregiver.study@mail.mil or by phone at 855-821-1469.

To find additional resources for TBI caregivers and family members, visit the TBICoE website.

You also may be interested in...

DOD TBI Worldwide Numbers At-A-Glance

Publication
8/24/2022

TBICoE is the Defense Department’s office of responsibility for tracking traumatic brain injury data in the U.S. military. The "DOD TBI Numbers At-A-Glance" provide a high level overview of TBI's sustained since 2000 and also show the data by severity and service branch.

Recommended Content:

Traumatic Brain Injury Center of Excellence | DOD TBI Worldwide Numbers

Neuroimaging Following Mild TBI Clinical Recommendation

Publication
5/16/2022

This TBICoE clinical recommendation allows primary care managers to make an informed, evidenced-based decision regarding whether or not imaging is indicated following a concussion/mild TBI.

Recommended Content:

Traumatic Brain Injury Center of Excellence | TBI Provider Resources | Traumatic Brain Injury Center of Excellence

2021 Traumatic Brain Injury Center of Excellence Annual Report

Publication
4/26/2022

The 2021 Traumatic Brain Injury Center of Excellence (TBICoE) Annual Report provides a look at accomplishments and activities from calendar year 2021.

Recommended Content:

Traumatic Brain Injury Center of Excellence | Traumatic Brain Injury Center of Excellence | TBI Educators | TBICoE Research | TBI Provider Resources

References and Acknowledgements: Neuroimaging Following Concussion Clinical Recommendation

Publication
4/6/2022

This document acknowledges those who participated in the expert working group with the Traumatic Brain Injury Center of Excellence and provides the resources and references used to develop the Neuroimaging Following Concussion/Mild Traumatic Brain Injury: Guidance for the Primary Care Manager.

Recommended Content:

Traumatic Brain Injury Center of Excellence

TBICoE 2021 Publications

Publication
3/16/2022

Master list of 2021 TBICoE articles published in research journals

Recommended Content:

Traumatic Brain Injury Center of Excellence | Patient and Family Resources | TBICoE Research | Traumatic Brain Injury Center of Excellence

Acute Concussion Pathway of Care: MACE 2 and PRA Training

Publication
10/26/2021

The Traumatic Brain Injury Center of Excellence is hosting a combined Military Acute Concussion Evaluation (MACE 2) and Progressive Return to Activity (PRA) clinical recommendation virtual training.

Recommended Content:

Traumatic Brain Injury Center of Excellence | TBI Provider Resources | Education & Training Events | TBI Educators | Centers of Excellence

Assessment and Management of Dizziness and Visual Disturbances Following Concussion/Mild Traumatic Brain Injury

Publication
10/22/2021

This clinical recommendation provides medical staff with a single, comprehensive reference for the assessment and management of dizziness and visual disturbances following mild TBI/concussion. Dizziness and visual disturbances often present with overlapping symptoms and should prompt a provider to perform a visual and dizziness—or vestibular—assessment.

Recommended Content:

Traumatic Brain Injury Center of Excellence | TBI Provider Resources | Traumatic Brain Injury Center of Excellence | Centers of Excellence

Improving Relationships after TBI

Publication
10/21/2021

Flier for the Interactive Relationship Building Workshop for Active-Duty Military and Veteran TBI Caregivers and Families: This flier provides information on TBICoE's educational session for caregivers of active-duty service members and veterans who have sustained a TBI. In addition to sharing caregiver resources and current research initiatives, webinar topics will also include relationship building strategies, improving communication and addressing intimacy after TBI.

Recommended Content:

Traumatic Brain Injury Center of Excellence | Patient and Family Resources | TBI Provider Resources | Centers of Excellence | Traumatic Brain Injury Center of Excellence

2000-Q2 2021 DOD Worldwide Numbers for TBI

Publication
10/14/2021

TBICoE is the Defense Department’s office of responsibility for tracking traumatic brain injury data in the U.S. military. Here you’ll find data on the number of active-duty service members—anywhere U.S. forces are located—with a first-time TBI diagnosis from calendar year 2000 through the second quarter of 2021. The data is also broken down by each branch of the armed services.

Recommended Content:

Traumatic Brain Injury Center of Excellence | DOD TBI Worldwide Numbers | Centers of Excellence | Traumatic Brain Injury Center of Excellence

2021 Q2 DOD Worldwide Numbers for TBI

Publication
10/14/2021

TBICoE is the Defense Department’s office of responsibility for tracking traumatic brain injury data in the U.S. military. Here you’ll find data on the number of active-duty service members—anywhere U.S. forces are located—with a first-time TBI diagnosis in the second quarter of calendar year 2021. The data is also broken down by each branch of the armed services.

Recommended Content:

Traumatic Brain Injury Center of Excellence | DOD TBI Worldwide Numbers | Traumatic Brain Injury Center of Excellence

2000-Q1 2021 DOD Worldwide Numbers for TBI

Publication
8/9/2021

TBICoE is the Defense Department’s office of responsibility for tracking traumatic brain injury data in the U.S. military. Here you’ll find data on the number of active-duty service members—anywhere U.S. forces are located—with a first-time TBI diagnosis from calendar year 2000 through the first quarter of 2021. The data is also broken down by each branch of the armed services.

Recommended Content:

DOD TBI Worldwide Numbers | Traumatic Brain Injury Center of Excellence

2021 Q1 DOD Worldwide Numbers for TBI

Publication
8/9/2021

TBICoE is the Defense Department’s office of responsibility for tracking traumatic brain injury data in the U.S. military. Here you’ll find data on the number of active-duty service members—anywhere U.S. forces are located—with a first-time TBI diagnosis in the first quarter of calendar year 2021. The data is also broken down by each branch of the armed services.

Recommended Content:

DOD TBI Worldwide Numbers | Traumatic Brain Injury Center of Excellence

PRA Case Study Workbook

Publication
7/23/2021

This workbook, paired with corresponding PRA Training Video 8, is an interactive clinical case scenario to test your understanding in applying the Progressive Return to Activity. We hope this will help medical providers become more familiar with the PRA process when treating service members with concussion.

Recommended Content:

Traumatic Brain Injury Center of Excellence | TBI Provider Resources | Provider Education | Traumatic Brain Injury Center of Excellence

2020 TBICoE Annual Report

Publication
7/9/2021

2020 Traumatic Brian Injury Center of Excellence (TBICoE) Annual Report.

Recommended Content:

Traumatic Brain Injury Center of Excellence | Traumatic Brain Injury Center of Excellence

Traumatic Brain Injury: A Guide for Caregivers of Service Members and Veterans

Publication
7/7/2021

The 2021 "Traumatic Brain Injury: A Guide for Caregivers of Service Members and Veterans" is a recovery support tool to assist caregivers of service members and veterans who have sustained a traumatic brain injury at any severity level.

Recommended Content:

Traumatic Brain Injury Center of Excellence | TBI Educators | Traumatic Brain Injury Center of Excellence | Psychological Health Center of Excellence
<< < 1 2 3 4 5  ... > >> 
Showing results 1 - 15 Page 1 of 6
Refine your search
Last Updated: December 03, 2021

DHA Address: 7700 Arlington Boulevard | Suite 5101 | Falls Church, VA | 22042-5101

Some documents are presented in Portable Document Format (PDF). A PDF reader is required for viewing. Download a PDF Reader or learn more about PDFs.